New PDF release: 31st Hemophilia Symposium: Hamburg 2000

By I. Scharrer,W. Schramm

a few 23. five% of all participants and sufferers of remedy facilities accomplished the questionnaire. One remarkable truth is that participation was once optimum among aged sufferers with serious hemophilia, while purely 12. 2% of kin spoke back. review of the consequences printed that almost all of individuals favor deal with ment in a hemophilia remedy middle with a excessive popularity, while purely 2. 7% examine therapy in a really good perform to be adequate. the explanations for which are the need of the 24-h-availability of a doctor, average certified exam of joints and muscle tissue, documentation of product batches, laboratory assessments and solid cooperation with different schools. As many as sixty eight. nine% of the sufferers occasionally shuttle greater than two hundred km. What definitely performs a job here's belief within the remedy heart and its physicians, for it's visible that regardless of the truth that seventy four. three% re quested standardized therapy regimens for all remedy facilities, in simple terms approximately 20% may switch to a closer heart. remedy with issue concentrates is mostly thought of to be very secure. that's to assert, fifty eight. 1 % regard recombinant items to be very secure, while in simple terms 24. three% imagine this for plasma items. in comparison, there have been frequently no significant changes saw concerning final result (factor intake, period of deal with ment). bring up in greatest garage temperature (47. 2%) and half-life (73%) have been the main widespread solutions to the query of what good points the goods should still have.

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